Love, Tammy - 04/05/2012

Morning Mom,some not so happy news at clinic yesterday. Seems her MRI was not stable after all. Furthest thing from stable actually. Several new lesions were found, several old ones have grown and all are enhanced. I sit here reading the report and I want to vomit! HOW could this be?? She isn't even having any symptoms! She's gaining weight...finally and her severe ear infections have been cured! They called...the day after her scan. I wasn't expecting results until yesterday and they called the day after her MRI and said with such enthusiasm ....STABLE, her scans are stable!! This is like a friggen nightmare, how can it go from the best news to the worst?? I'm gonna sit here and imagine what you'd say. You'd tell me she's not like other kids, she responds differently. You'd remind me how strong she is and you'd remind me how she's been down this road many times before. Then you'd wrap your arms around me, hug me tight and tell me everything will be ok. Little Taylor will be fine! She started temodar last night. Was pretty sick from about midnight to 3 ish, but now she is singing. That's our girl! Watch over her Mom! I love you, I miss you and I sooo wish you were here!!! (((((((((HUGS))))))))) *******KISSES******** ~ Tammy