Clinic yesterday, you know 'the appointment after'. My mind wandered/raced the entire drive down to the point of not really remembering the drive down and the thing is, it wasn't even about Taylor, I know I know. Was pretty much a mess by the time I got there. And then...it hit me like a train wreck, 'I'm at clinic'. Took all I had to get on the elevator and push '10'. Anyhow, I made it and got through. Ironically every person I interacted with was not our regular anything. Except...well read on. One of the drugs Dr C has her on needed pre-approval from her insurance and I've been on the phone arguing about this all week. Finally, FINALLY it was approved yesterday morning. Well typically I just 'assume' things but couldn't leave this one alone. So just as we were ready to leave I just HAD to make some calls...just to make sure we all were on the same page. The pharmacy confirms that her med WAS approved but not for them to fill it, had to go through a specialty pharmacy. Sooo, in the meantime her nurse had already left and I couldn't get confirmation from her, which led me to leaving the safety zone of our room and hunting someone down. That someone was Chris....1st person I ran into. Anyhow after a little chat she tells me she'll take care of it and as I was walking away adds in "and we have it approved for a year Tam, so we won't have to keep going through this." I don't know Mom, but hearing A YEAR, another entire YEAR is EVERYTHING! A YEAR A YEAR A YEAR has been singing in my head all the ride home. It's really something how something so little to someone else can give soooo much hope and mean so much more to to another. Oh and on top of everything else we are doing for her. I've been researching and have decided to start her on a ketogenic diet. This eliminates all sugar and most carbs from her diet. She'll consume (well her g-tube will) moderate protein, and LOTS of fat. The key here....cancer cells feed off of sugar, we all know that. Soo, can't feed off something you don't give it. And as far as the carbs go. The body converts carbs into sugar so she'll need to be deprived of those as well. I have her on a semi ketogenic diet now. I've already increased her fat and taken away all sugar. She's getting a few too many carbs but her low formula to replace her current one is on the way =) I have her nutritionist helping out on this and I won't put her on a full blown keto, just the mostly kind that doesn't require hospitalization and can be managed at home. Keep watching over us will you please?? LOVE YOU MORE! ((((((HUGS))))) *******KISSES*******