Morning Mom =) Been awake awhile, couldn't sleep. Tay had clinic and ENT yesterday. We didn't see Dr C at all, she had her vincristine and pentam. She's neutropenic again. Thought when we went off the hard stuff we'd leave the neutropenia behind....hmmm. Red cells are a little down too. All the darn bleeding from her ear isn't helpiing. About her ear Mom...it isn't good! She's gonna lose it Mom, I just know it. It's not like she hears much from that ear,but there's always 'hope', right? Hope that tumor will ease up just a little. Right now it is pushing so hard against her ear drum/canal...and oher stuff. We can't keep it open enough to get the meds in or let it dry out. I knew the infection was bad, but I wasn't prepared for what I was told. He put in a wick...which is a spongy piece that he slips in the canal, it then expands holding the canal open enough for the drops to slip thru. He said oral antibiotics don't tend to do a whole lot...it's the drops she needs. Well the little stink had the ear wick out before we even got home...so now what? Not only, but the one oral antibiotic that had a 'chance' at helping was out of stock...both at the pharmacy and warehouse?? UGH! What is it with pharmacies lately? I gotta call her shortly and see what he wants to do. Put the wick back in?? I dunno know about that girl. She did however gain almost a pound...so yayyyy! Of course she's been extra pukey with the ongoing feeds,but she gained..sooo?? Kinda hard to be too happy when the price she pays is so much discomfort. Hey, I saw Dr Droste yesterday. I was just coming into the lobby and there he was. Tay hasn't seen him but maybe once since you left us, so I bet it's been a couple years now. Anyhow I don't know who was more excited to see who...him or me =) We talked for a few,he he gave me a couple hugs and told me "I was special", lol. Checked Tay out, even peeked in her eye. I sooo remember hating him Mom (he was never your fav). All those exams he put Tay thru...of course he had to do it, but UGH! Then him being the 1st Dr to break the horrific news on her condition when she was 2 days old...ugh! But he sure has come a long way since then. You'd like him now too Mom. Walked over to ENT about an hour later and had to pass his office. He saw us and stepped out "2 times in one day, it's really good to see you again" =) So yeah, highlight of my day was running into good ol Dr D not once but twice =) Hey guess what.....Sandy and Gabi are coming up today! She has a couple days off work so they're coming up and spending the night! Gonna go tubing later....wooohooo!! Yes, Mom...we'll be careful! It's gonna be sooo HOT, she couln't have picked a better couple days to come up! I miss you Mom, so wish you were here to help me thru all of this, but I know you watch over with that smile of yours and say "just TRUST...every little thing will be ok, it'll all make sense someday"! I LOVE YOU Mom (((((((HUGS)))))))) ********KISSES***********